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News Letter

Spring 2005

 

Hi Everyone!!

Our 8th Annual Picnic has been postponed.   

It will be held later this year we will keep you posted. 


 Click on link for directions to Christmas Tree Park  -----

DIRECTIONS TO THE PICNIC


 

TS Experiences –

Based on past letters that we have posted on TS experiences, we have received positive feedback from a number of people.  We would like to post more of these letters in hopes of changing attitudes and informing those in need.  These experiences could be on when you first found out that you or your child had TS, what you had to deal with or what you are still dealing with.  Your support would be welcomed.  Thank you from those that you have helped and those that you will help.


Growth Hormone Journal – 

We have added a small journal on how our experience with GH shots have been going.


Feedback Requested –

I would like to thank everyone who has responded to me when I call for help for medical referrals.  The responses have been welcome information to those in need.  If you have had positive experiences with your physician and would like to refer them, please send to me their name, area, phone number and why you like this doctor.  This could be a family doctor, pediatrician, endocrinologist or any specialist that you have used.  I will compile a list for future needs.


Thank you,
Kathryn L. Mattson

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